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"Dr. Laura....Your email came right smack on a long day's journey into the evening to bedtime. My daughter, 4 was diagnosed with asthma since 3. Parenting a child who is frequently sick or missing out on school fun or frequently saying her dolls are sick is so tiring, if not painful. She was tired.. demanded things...She was just sick last week and she seemed to be getting sick again... I have done what I can to visit her doctors regularly and wonder what more to do...Maybe all I ask for is the courage to go on and on and maybe the day will come when taking charge of a young child with asthma is less guesswork and more two way communication. Thanks for reminding us that parenting is hard work." -- Linda
Parenting is hard work even with a well
child. With a child who has a chronic illness, it is so
much harder. As Linda says, it takes a lot of courage.
It doesn't help that with a
young child so much is "guesswork" rather than two-way
communication.
That always increases our anxiety. But over time, our
children can
indeed learn to notice what is going on physically and
emotionally, to manage their own
illness and their feelings about it.
At four, of course, she depends on us to do that. That
means we
have to be able to tolerate her pain, frustration and
disappointment.
Every parent in the world would find that challenging.
I think the first step is always to tend to our own
feelings about our child's illness. To
cry, to grieve the loss of the healthy child we were hoping
for, to
forgive our self, and our child, and maybe the universe.
If we can regularly
check in with and process our own feelings, being with our
child's feelings becomes more tolerable. We all need someone to talk
to,
who doesn't try to "fix" things, but will just let us vent. When we have a chronically ill child, this becomes critical.
Illness requires so much medical supervision from parents.
What
often goes un-remarked is all the emotional help that
parents and
children need to cope well with illness. I think that's the
"more" that
remains to be done: helping our child to express her
disappointment about missing the fun, being frightened when
she can't
breathe, being angry at us that we can't fix it.
How?
1. Play. When her doll
is "sick", she's attempting to work through her feelings
using her
dolls. Playing "sick" doll with her is a perfect, healthy
way to help
her process those emotions. You might find it helps you,
too, when you
can humorously act out an extremely demanding sick child.
2. Let her be angry. Don't take it
personally. Once
she gets past her anger, all her fear and sadness can come
up. If you
need support, check out "Helping your Child with Anger" on my website.
3. Let her cry in your arms. There's nothing
as
healing as a good cry. If you just sit with her and listen
to her
feelings (both verbal and nonverbal) and acknowledge them,
she'll
probably begin crying. "Sweetie, I know you're
disappointed you had
to miss that fun time...You are so sad....It is no fun to
have
asthma...It doesn't seem fair....You are feeling so
bad...It's ok to
cry...Everybody needs to cry sometimes...Come let me hold
you....You can
cry as much as you want..." All young children need to
cry
sometimes; chronically ill children have many more feelings
to process
because they get so frightened. They usually need our help
to feel safe
enough to let these feelings come up and swamp them.
But we can't really be there for our child until we first
support
ourselves to work through our own feelings. I wish you
courage, and
comfort, and strength.
And some joyful downhill coasting to balance those tough uphill stretches on your parenting journey.



